Clinical Trial Wk #1 – Morning People

After a 4-1/2 year break, we are back to another treatment season for Wally’s Chronic Lymphocytic Leukemia, to prevent it from mushrooming again. I’ll write a little post each week about some aspect of it.

Registration

HIS APPOINTMENT is 7:30 AM.
He’s told to be there by 7:15.
We agree to leave the hotel at 7:00. It’s a 2-mile drive and the hospital offers valet parking, so we can just pull up and get out.

“Seven is plenty early,”
we agree,
we decide,
we nod,
we say,
we repeat before turning out the lights.

But by the time 7 AM rolls around, he’s already wearing a hospital bracelet and we are waiting for an elevator to take us to the 5th floor. It’s just our way. We are morning people. We do not know how to sit still when the sun is rising.

I won’t be reporting all the details of a day, but just to acquaint you with how it goes…

An IV is started. Labs are taken and sent off. There’s a parade of people in and out, one after another: Nurse-practitioner, Clinical trial coordinator, Pharmacist. Lab results come back. He’s approved to start. The investigational drug is requested. We are asked if we need anything. While waiting, we fool around with the buttons on the hospital bed, just like a pair of kids. By the time the drug shows up, and the numbers are checked and double-checked by the nurses, and the infusion is begun, it’s 10:30 AM – a full 3 hours after we arrived in the room, not because of delays but due to procedure. There’s an order in which things must happen.

It’s a long day, the first day, because the infusion is slower, to watch for adverse reactions. None develop.

We get out at 3 PM.

It’s a 4-hour ride back to Louisville and I’ll be driving. A block from the Medical Center, as I sit at a traffic light, waiting to make a left onto the entry ramp for the interstate, he exhales long.

“Ahhh, we did it!” he says. But the hardest part of my day has just begun. 3:00 PM is past peak for a morning person and in another two hours we’ll be passing through Cincinnati at rush hour. I have dreaded this drive for weeks. Only I haven’t mentioned it. And the reason I haven’t mentioned it is where part of my own story lies. I keep meaning to explore that in my journal, but then it would be written down somewhere where someone might read it.

That’s it, rough and unpolished. Off to pick up the dog from the kennel and go to ESL class.

Next post in series:
Week #2 – Not Myself

About Marilyn

Reading, thinking, listening, writing and talking about faith, creativity, ESL for refugees, grief and finding the story in a story. Student of Spanish. Foe of procrastination. Cheez-it fan. People person with hermit tendencies or vice-versa. Thank you so much for reading.
This entry was posted in clinical trial, CLL. Bookmark the permalink.

8 Responses to Clinical Trial Wk #1 – Morning People

  1. Juliana says:

    A big hug to you both Marilyn! And prayers for that four hour drive next week.

    Liked by 1 person

  2. pastordt says:

    Oh, friend. I am so sorry you must be on this journey. Again. Many prayers as you walk it. You and Wally are on my daily list for the duration. How long NG must you make this trek?

    Liked by 1 person

  3. I am careful what I write down as well. If one of my journals were to fall into your hands, I think you could read between the lines. Not many people could.

    Like

  4. Pingback: Infusion Mondays #2 | MarilynYocum.com

  5. Pingback: Infusion Mondays #3 – Venturing Beyond the Confines | MarilynYocum.com

  6. Katie says:

    Hugs and prayers along your journey. Thank you for sharing images and thoughts:) Gratefully, Katie

    Like

  7. Marilyn, I am sorry on two counts: 1) I have been behind on my reading and did not pick up on this, and 2) you and your husband are going through this.

    Like Megan, I can read between the lines.
    Hugs

    Like

Share your thoughts!

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s